Anbefalt litteratur
Sykdomserfaringer
Corbin,JM. The body in health and illness. Qualitative Health Res 2003; 13: 256-67. http://qhr.sagepub.com/content/13/2/256.full.pdf+html
Lawton J, Rankin D, Peel E, Douglas M. Patient perception and experiences of transition in diabetes care: a longitudinal qualitative study. Health Expect 2009; 12: 138- 48 http://www.ncbi.nlm.nih.gov/pubmed/19309488
Jutel A. medically unexplained symptoms and the disease label. Sociol Theor Health 2010; 8: 229-45. https://search.proquest.com/docview/740314522/fulltextPDF/116784AB61404480PQ/4?accountid=14699
Mengshoel AM, Sim J, Ahlsen B, Madden S. Diagnostic experiences of patients with fibromyalgia – A meta-ethnography. Chronic Illn (e-pub ahead Aug 2017) http://journals.sagepub.com/doi/abs/10.1177/1742395317718035?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%3dpubmed
Mengshoel AM, Norheim KB, Omdal R. Primary Sjögren’s syndrome –fatigue is an ever –present, fluctuating and uncontrollable lack of energy. Arthr Care Res 2014; 66 (8): 1227- 32. http://onlinelibrary.wiley.com/doi/10.1002/acr.22263/pdf
Nettleton S. "I just want permission to be ill": Towards a sociology of medically unexplained symptoms. Social Science Medicine 2006; 62: 1167-78. http://ac.els-cdn.com/S027795360500403X/1-s2.0-S027795360500403X-main.pdf?_tid=2fcb1b74-527a-11e3-b63f-00000aacb35f&acdnat=1385017229_ad6b7eed37d766a76d4c3c20202fb319
Paterson B.L. The shifting perspectives model of chronic illness. J Nursing Scholarship 2001; 33:21-26. http://www.ncbi.nlm.nih.gov/pubmed/11253576
Recoveryprosesser
Grape HE, Solbrække KN, Kirkevold M, Mengshoel AM.Tiredness and fatigue during processes of illness and recovery: A qualitative study of women recovered from fibromyalgia syndrome. Physiother Theor Pract 2017; 33(1):31-40. http://www.tandfonline.com/doi/full/10.1080/09593985.2016.1247933
Grape HE, Solbrække KN, Kirkevold M, Mengshoel AM. Staying healthy from Fibromyalgia is ongoin hard work. Qual Health Res 2014; 25(5):679-88 http://qhr.sagepub.com/content/early/2014/11/07/1049732314557333.full.pdf+html
Kralik D, Koch T, Price K, Howard N. Chronic illness self-management: taking action to create order. J Clin Nursing 2004; 13: 259-267. http://www.ncbi.nlm.nih.gov/pubmed/14723679
Richardson JC, Ong BN, Sim J. Remaking the future: contemplating a life with chronic widespread pain. Chron Illness 2006; 2: 209-218. http://www.ncbi.nlm.nih.gov/pubmed/17007697
Roberts g, Boardman J. Becoming a recovery-oriented practitioner. Adv Psychiatric Treatment 2014; 37-47. http://apt.rcpsych.org/content/20/1/37
Sallinen, M., Kukkurainen, M. L., Peltokallio, L., Mikkelsson, M., & Anderberg, U. M. Fatigue, worry, and fear--life events in the narratives of women with fibromyalgia. Health Care for Women International, 2011; 33(5), 473-494. http://www.tandfonline.com/doi/pdf/10.1080/07399332.2011.645967
Sanderson T, Calnan M, Richards P, Hewlett S. Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociol Health Illness 2011; 33: 618-33. http://www.ncbi.nlm.nih.gov/pubmed/21281314
Self-management og health literacy
Borge CR, Mengshoel AM, Omenaas E, Moum T, Ekman I, Lein MP, Mack U, Wahl AK. Effects of guided deep breathing on breathlessness and breathing pattern in chronic obstructive pumonary disease: A double-blind randomized control study. Patient Education and Counseling. 2014. I trykk
Larsen M, Hagen KB, Krogstad AL, Aas E., Wahl AK .Limited evidence of the effects of patient education and self-management interventions in psoriasis patients: A systematic review. 2013 (Epub ahead of print). http://www.ncbi.nlm.nih.gov/pubmed/24184041
Larsen MH, Krogstad AL, Aas E, Moum T, Wahl AK. (2014). A telephone based motivational interviewing intervention has positive effects on psoriasis severity and self-management. A randomized controlled trial. Br J Dermatol Aug 21. E-pub ahead print. http://onlinelibrary.wiley.com/doi/10.1111/bjd.13363/pdf
Nolte S, Osborne RH. A systematic review of outcomes of chronic disease self-management interventions. Quality Life Research. 2013 Sept 22 (7):1805-1816. https://link.springer.com/article/10.1007%2Fs11136-012-0302-8
Urstad KH, Øyen O, Andersen MH, Moum T, Wahl AK. The effect of an educational intervention for renal recipients: a randomized controlled trial. Clin Transplant. 2012 May-Jun;26(3):E246-53. doi: 10.1111/j.1399-0012.2012.01666.x.
http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2022686948
Osborne RH, Batterham R, Livingston J. The evaluation of chronic disease self-management support across settings: the international experience of the health education impact questionnaire quality monitoring system. Nurs Clin North Am. 2011 Sep;46(3):255-70, v. doi: 10.1016/j.cnur.2011.05.010. PubMed PMID: 21791261. http://www.sciencedirect.com/science/article/pii/S0029646511000351
Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). BMC Public Health. 2013 Jul 16;13:658. doi: 10.1186/1471-2458-13-658. PubMed PMID: 23855504; PubMed Central PMCID: PMC371865 http://www.biomedcentral.com/1471-2458/13/658
Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002 Oct -Nov;48(2):177-87. Review. PubMed PMID: 12401421. http://www.sciencedirect.com/science/article/pii/S0738399102000320?via%3Dihub
Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003 Aug;26(1):1-7. Review. PubMed PMID: 12867348. https://link.springer.com/content/pdf/10.1207%2FS15324796ABM2601_01.pdf
Larsen MH, Wahl AK, Krogstad AL, Aas E. Cost-utility Analysis of Supported Self-management with Motiva-tional Interviewing for Patients with Psoriasis. Acta Derm Venereol. 2016 Jun 15;96(5):664-8. doi: 10.2340/00015555-2331. PubMed PMID: 26714522. https://www.medicaljournals.se/acta/content/html/10.2340/00015555-2331
Nutbeam D. The evolving concept of health literacy. Soc Sci Med. 2008 Dec;67(12):2072-8. doi: 10.1016/j.socscimed.2008.09.050. Epub 2008 Oct 25. PubMed PMID: 18952344. http://www.sciencedirect.com/science/article/pii/S0277953608004577?via%3Dihub
Sørensen K, Van den Broucke S, Fullam J, Doyle G, Pelikan J, Slonska Z, Brand H; (HLS-EU) Consortium Health Literacy Project European. Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health. 2012 Jan 25;12:80. doi: 10.1186/1471-2458-12-80. Review. PubMed PMID: 22276600; PubMed Central PMCID: PMC3292515. https://bmcpublichealth.biomedcentral.com/articles/10.1186/1471-2458-12-80
Batterham RW, Hawkins M, Collins PA, Buchbinder R, Osborne RH. Health literacy: applying current concepts to improve health services and reduce health inequalities. Public Health. 2016 Mar;132:3-12. doi: 10.1016/j.puhe.2016.01.001. Epub 2016 Feb 9. Review. PubMed PMID: 26872738. http://www.sciencedirect.com/science/article/pii/S0033350616000044?via%3Dihub
Friis K, Lasgaard M, Osborne RH, Maindal HT. Gaps in understanding health and engagement with healthcare providers across common long-term conditions: a population survey of health literacy in 29,473 Danish citizens. BMJ Open. 2016 Jan 14;6(1):e009627. doi: 10.1136/bmjopen-2015-009627. PubMed PMID: 26769783; PubMed Central PMCID: PMC4735217. http://bmjopen.bmj.com/content/6/1/e009627.long
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